New Essay in HuffPost

How I broke my jaw smiling and other tales of life with Ehlers-Danlos

I’ve diligently worked my entire life to cultivate the grace with which I was not born. Only in granting myself compassion did I truly find it. Learn more about my journey with hypermobile Ehlers-Danlos Syndrome in Huffington Post.

Thank you to editor Emily McCombs for the chance to share my story. I hope it helps someone else find an answer and perhaps hope for the future.

FOLLOW-UP - May 2023

Thank you to everyone around the world (thanks, HuffPost UK) who has reached out to me with stories of hEDS, especially those who wrote to say the essay had shed light on their own experiences. As I learn more about my own diagnosis, I will continue to share it online on Instagram and Mastodon.

I never fancied myself an athlete because I get injured easily, so it was an utter delight to see Yahoo! Sports also pick up the essay.

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